Tuesday, June 19, 2012

HI! Well, I wanted to share some photos with you and do a quick overview on how our little girl is doing.....and our new little BOY! Thats right, Esther is going to have a new little brother to protect her! God has showed himself so incredibly faithful! This new little one has shown to be very healthy and is presenting no symptoms or problems that Esther has! All praise be to Him! 

Esther is doing very good! She is learning new signs still, she knows about 10 by now and is picking them up quicker than I can keep up! Billy was scratching his head the other day and now she will look at us and scratch her head! Amazing what kids pick up....and how fast! :) Billy and I are both wanting to learn sign language, so if any of you have any recommendations, let us know! :) 

She still is needing oxygen 24/7, so it keeps us pretty grounded as for now. But, nothing is out of Gods hands and we know that whatever He has in store for Esther, He has in store for us as well. Esther, in so many ways has saved us and has kept us exactly where He wants us to be, closest to Him :) 

Suctioning is also her second biggest need. Its where we use a machine (suction) to clean out her trach, from the saliva that we normally swallow. This keeps us very busy as she needs suctioned about 50-75 times a day! Quite a bit. 

Esther is on a ventilator at night time to help give her a break from breathing so hard during the day. Her respiratory rate is so high they compare her breathing to someone running all day - so at night it gives her a break from breathing so quick and fast, to relax and slow down and get a good nights rest!

As for now, we have no surgeries or even doctor appointments in line for her, which is kind of weird for us! We are enjoying her everyday as she gets bigger and seeing her development come along! Thank you to all of you pray warriors out there! You do not know how much of an impact you have made on this little girls life! 

Wednesday, May 23, 2012

Update!



     It's amazing to think of how much can change in a day let alone what has changed in these past 5 ...do I dare say it...MONTHS! I know I am probably the worlds worst 'blogger' but I am going to try to work on it, I said TRY didn't I? ;) I know it will be much easier now that we are going to be living in the country again and have internet :) I think to make this blog complete i'll try to make it in outline form so its a bit quicker. (These are in no order of importance either :) )

1: We just recently felt the leading to relocate back to Southern Oregon. The Lord has been so faithful as we rely on His guidance daily! We were so torn to leave the Mission- we loved it so much yet we felt the Lords hand moving us and there's no way we want to be out from under His covering! 

2: We are just finishing up escrow on our first home! We are very excited as its going to be an adventure in so many ways! Its only 580 sq ft (that just gave me writers cramp, is that a bad sign?) j/k! We're hoping to move in the end of June...ish! It needs a little TLC first, so this date is very flexible.

3: We are PREGNANT again! So far everything looks very healthy and from what we can see on the ultrasound so far- IT HAS A JAW :) Praise be to God! 

4: Esther had another jaw distraction in april. She is doing really well! One of the rods in her jaw actually broke in the process of distracting which made the success rate lower than we anticipated, but there is a reason for everything and no bone got damaged so we are happy! She is thriving, gaining weight, STANDING and we are progressing her with walking steps! She points, claps, smiles, and loves like no one I know! 

5: Are you crazy, isn't that enough exciting information :) I love you guys so much! I'm going to write more, just you watch! xoxo